Stigma is a common problem for people who live with chronic illnesses. People who have ileostomy or colostomy surgery to treat inflammatory bowel disease (Crohn’s disease or ulcerative colitis), face a number of myths and misconceptions. Some of these can be hurtful and damaging, which is why ostomy advocacy is so important and impactful.
An ostomy is when an artificial opening is made in the abdomen for waste to leave the body. A small piece of intestine is brought through the abdomen wall, which is called a stoma. An appliance is worn over the stoma to collect stool (poop) as it leaves the body. The appliance is emptied out into the toilet when it starts to get full.
Ostomy surgery can be done for a variety of reasons and even young people can have an ostomy. An ostomy can be temporary or it can be permanent. What’s important to know is that ostomy surgery is always life-saving. In many cases, it gives people a new chance at a life, often without the symptoms and pain of their illness. People with ostomies live full, active lives, doing all the things they did before and more.
For Ostomy Awarenss Day, let’s bust some of the myths and misconceptions about people who live with an ostomy.
Myth: Everyone Can Tell When You Have An Ostomy
No one will know you have an ostomy unless you tell them. For starters, ostomy appliances have improved in technology so they are not visible under clothing. Additionally, most people aren’t looking at other people’s clothes for an ostomy anyway.
Myth: Ostomies Smell
Many people worry that an ostomy will smell bad. The truth is, ostomy appliances are made to contain odors. There are also a variety of ways to combat odors, including bags that have filters or an odor barrier, or using odor-eliminating drops or sprays.
Myth: People With an Ostomy Can’t Go Swimming
An ostomy doesn’t stop people from swimming. Ostomy appliances are waterproof and there are a variety of accessories such as covers, wraps, and belts that can help keep a good seal while at the beach or pool.
Myth: People With An Ostomy Can’t Date
Have an ostomy doesn’t get in the way of dating, having sex, or getting married. Many people who have an ostomy go on dates and have romantic relationships just as their peers do. For those that prefer them, there are several different types of undergarments made for men and women with an ostomy that can help in feeling sexy and confident.
Myth: An Ostomy Limits Clothing Choices
People who live with an ostomy can wear any kind of clothing they prefer. That includes wedding dresses, workout clothing, form fitting clothing, and swimsuits.
Myth: People With An Ostomy Can’t Have Children
People who live with an ostomy can get pregnant and have children. Having had ostomy surgery doesn’t usually affect the ability to carry a baby to term or have a vaginal birth. It’s always important to talk with a doctor before deciding to pursue pregnancy, but for the most part, a healthy pregnancy and baby is possible.
Myth: People With An Ostomy Can’t Babywear
People somtimes think that a structured baby carrier will not fit comfortably for a person living with an ostomy. However there are so many different types baby carrier and brands that can work with any body shape or size. For instance, if a structured buckle carrier sits too low, try a shorter carrier. Also, designs like a Mei Dai, Onbuhimo, a ring sing, or a structured wrap carrier work well no matter the placement of a stoma. Wearing a stoma guard and an ostomy belt may also help to provide extra protection.
Myth: People With An Ostomy Cannot Exercise
Some people feel so much better after having ostomy surgery that they are able to get back to a workout routine, or start one for the first time. It’s important to consult a doctor about restrictions, but people who live with an ostomy can enjoy exercise and playing sports.
IBD Moms
Here at Mamas Facing Forward, we try to offer support to all moms and moms-to-be living with chronic illness. But sometimes you need to connect with mamas living with your chronic illness to really get the answers you need. If you’re a mom or mom-to-be living with IBD, we highly recommend you check out the resources offered by IBD Moms!
